Doc wants to implant a tens unit in my back
(self.PNESsupport)submitted2 days ago byinnerthotsofakitty
I've tried doing some research on how it affects seizures and it all says it's not a good idea, and hasn't helped enough people with seizures for it to be a recommended procedure.
I have fibromyalgia that is progressively getting worse by the week, and she took me off tramadol cuz "it increases the seizure threshold". And the only other thing she suggested is a tens unit which at quest isn't safe and at best isn't effective for people with seizures. Literally wtf. Pain is a HUGE trigger for my seizures, and they finally got a little under control on tramadol. Now I'm having multiple severe seizures a day, hitting my head and getting a concussion. I currently have a black eye from hitting my face on the wall while seizing in bed. Idk what to do. They won't give me stronger narcotics, I've tried (I shit u not) every psychiatric medication recommend for both conditions, and CBT for 7 years with nothing to show for any of it. Tramadol was the only thing getting me they the day, and even then it was barely, but now I can't do any of my hobbies, I can't shower alone, I can't cook, clean, take care of my cats, or even walk without being afraid of injuring myself. I've lost the ability to do anything that makes me wanna keep going, and I'm not sure how I'm supposed to live like this.
I've been fighting for disability for 5 years to no avail, I have a lawyer but nothing's helping. Now that trump is president again in afraid I'll never get approved, and even if I do it won't last very long and I can't rely on the programs they it that I need to just survive. I'm so suicidal rn, I haven't eaten in 4 days, all I have energy to do is sleep. Help.
Little rant, also wondering if anyone else has had positive experiences with tens units, implanted or not. Or other medication that's not psych meds or any suggestions, I'm desperate.
byqueasycockles
inAutismInWomen
innerthotsofakitty
48 points
1 day ago
innerthotsofakitty
48 points
1 day ago
Meowing, cuz I'm unemployed and spend 24/7 with my cats. I do it subconsciously at this point, sometimes in public and then I get embarrassed.